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PACE Trial’s Forbidden Fruit: Is The Data Really Poisonous?

The Self-Taught Author

Duchesnea_indica1 A Mock strawberry: No it’s not poisonous, despite what you may have heard. Just tasteless. A freedom of information (FOI) request was submitted to Queen Mary University London (QMUL) in 2014 for a small portion of the PACE trial data (below I go into detail about precisely what data has been requested, and you can skip ahead if you want to). QMUL refusedthis request. The case went to the ICO who agreed with the requester and ordered QMUL to release the data. QMUL haveappealed this decision andthetribunal will take place in 2016 with the court deciding whether QMUL have to release the data, or not. The outcome is impossible to predict, but it’s important. I wrote previously about why we must be allowed to see the data.

Here is my opinion: For ME/CFS, this tribunal case is one of the most important things that will happenin the whole of…

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